You don't have to be a scientist or a doctor to make a difference for CSCF families. Every share, every connection, every voice raised in awareness matters. Here's how you can help.
Every action — big or small — helps build a stronger community and a brighter future for CSCF families.
The single most powerful thing you can do is share this website with anyone who might benefit — families, doctors, teachers, or friends. The more people who know about CSCF, the faster families find answers.
Whether you are a parent, patient, caregiver, or supporter — there is a place for you in the CSCF community. Join our private Facebook group, sign up for updates, or share your story.
Rare Disease Day is February 28th each year. But awareness for CSCF can happen any day. Wearing a ribbon, posting on social media, or speaking to your local school or hospital can all make a real impact.
Research is the path to better treatments and, ultimately, a cure. You can support research by connecting with researchers, participating in studies, or helping us build a global patient registry.
CSCF is so rare that awareness itself is a form of research. When more people know this condition exists, more families get diagnosed faster, more clinicians take interest, and more researchers ask questions. You are part of that chain.
Share this page
Copy the link and send it to someone
Join the community
Connect with other CSCF families
Raise awareness
Post about CSCF on social media
Support research
Connect us with researchers you know
Questions? Email us at hello@cscfsupport.org